Connor can ride to school thanks to Tonbridge Lions’ donation
by Andy Tong | 28th February 2019
CONNOR CRAWFORD has been presented with a custom-built tricyle by the Tonbridge Lions Club.
The seven year old from Hildenborough suffers from Duchenne muscular dystrophy, a rare genetic disorder which currently has no cure.
Duchenne prevents the body from producing dystrophin, a protein required for muscle strength and function. The disease, which tends to affect young boys, reduces mobility and eventually attacks the lungs and heart, leading to shortened life expectancy.
It is hoped that the tricycle will allow Connor to get around more easily and even ride to school at Stocks Green Primary.
His parents, Matthew and Emma, set up a charity called Chasing Connor’s Cure to raise money for research.
The Lions were able to donate the tricycle with money from a memorial fund for the late Steve Harvey, a member of Tonbridge Lions for 30 years, president in 2002 and club treasurer for the last 13 years.
His widow Val, who was aware of Connor’s condition, proposed helping him directly and the mode of transport was suggested.
Mrs Harvey presented the gift to Connor with Lions President Tom Simmons, and Connor was soon demonstrating his cycling ability on the garden path.
Mr Crawford said: “We are so very grateful to Val and the Lions for providing Connor with this tricycle.
“It enables Connor to cycle independently with his friends and family, which is vital for his wellbeing and independence.”
“We are always so humbled at how fantastic our local community have been since Connor’s diagnosis.”
For more information about Chasing Connor's Cure, visit chasingconnorscure.co.uk